HEALING FOR HAYLEY REBOOT

Hayley Filippini was one of GGG's stalwart junior golfers during our 4-year New Jersey run.

• She was diagnosed with a high risk pineoblastoma in early 2011. 
• Hayley's treatment was performed at CHOP and followed the St. Jude's SJMB03 treatment protocol. 
• In March, 2012 she was back to school full-time.
• In March 2013, as a freshman in high school she made the roster of the varsity girls golf team that I used to coach. 
• I got to know Hayley through Girls Go Golfing. I also got to know the family because both Hay's sister Taylor and her cousin Brooke came out for the golf team.
• On August 10, 2013 her dad Anthony sent out a heartbreaking update on the Healing for Hayley pages. The cancer had returned and she would have to face treatment once more.

(Back row: Hayley Filippini, Kaitlin Flynn, Krista Pastore)
(Front row: Tara Ferenczy (Hayley's cousin), Coach Lydia & Matt Ferenczy) at Annika's Clinic at Fiddler's Elbow.

I have copied and pasted their updates below. 

Please keep this spirited young woman and her family in your thoughts and prayers. 

Comments left below will be forwarded to the family.

CLICK HERE to read the post about annika-skypes-haley-filippini-how-cool is that?

Posted by HAYLEY'S parents on Aug 15, 2013 1:51pm

The last few days have been very busy and we haven’t had a chance to provide an update. Thank you for all the prayers and offers of kind support.

We were out and back in the car at 3:30 AM this morning to bring Hayley back to CHOP to be there by 9:30 AM to sign consent forms and to start her chemotherapy treatment of Temodar, Irinotecan and Avastin. We are planning on a long day in the clinic. We are asking for prayers for Hayley and that she remains comfortable throughout the day and has no side effects from the dosages she is being given.

After back and forth with the doctors, we finalized a treatment plan with Hayley’s doctor on Tuesday night. Wednesday morning we left home at 2:30 AM to drive Taylor down to Liberty University in southern Virginia. 

We want you to know that we are feeling calm and comforted today that God is with us. He puts people and situations in front of us that teach us to be grateful for all we have been given. I just needed to talk to another parent in the oncology waiting room to realize how blessed we really are. Words coming from the only parent I talked to, one who had a situation much worse, and his words on faith were reassuring, encouraging and providing answers to some of the silent fears present in my head. Today the day clinic is full, there is not a cubicle open for chemotherapy. First time we have seen it like this since we started coming here 2 1/2 years ago. We have been put in a private room for chemotherapy which is very rare. I am sure if went outside this room decided to speak to any of the other twenty or so parents of the pediatric cancer patients in the day clinic, I would get an even greater appreciation of the gifts we have been given.

Posted by Hayley's parents on Aug 18, 2013 10:46pm

Hayley has been feeling fatigued and has had spells of nausea the last four days. Her doctor said this should start to subside after she finishes her five days of chemotherapy. She has been taking frequent naps during the day and zofran as needed for the nausea. Please pray for her comfort as she completes the first part of this round of chemotherapy.

Thank you again for all your prayers.

Posted by Hayley's parents on Thursday, August 22nd

Exodus 14:14 The Lord your God will fight for you, you need only be still.

Hayley is having a tough time with exhaustion, nausea, and belly pain. It's rough on her body, and she has lost several pounds. Please keep praying for complete healing/cure and for God to guide the doctors and us to making the correct decisions for her. Please pray for God's healing hand to remove any tumors or cancer cells from her body. Please pray with confidence that God can and will heal her.

Mark 11:24 Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.

We also ask for prayers for Hayley's MRI on October 8th. We pray that the chemo is working on these tumors and cancer cells and that they are not resistant to chemo.

Mark 10:27 Jesus looked at them and said, “With man this is impossible, but not with God; all things are possible with God.

TRUST!

Golf clubs for your 2 to 5-year-old, Playing Skills & Practice Drills from ANNIKA's Coaches (my VISION 54 pals) & a Weight Training Program Designed for the FEMALE GOLFER!

Spring has sprung and it is time to get your golf games going whether you are 2, 22, 44 or 88! 

READY? 

SET! 

GO!!!

Checkout the golf clubs for your LITTLEST GOLFER from the littlest golfer link

• Designed for boys & girls ages 2-5 years. 
•  I have gifted my (nearly) 3 year old nephew with a set and he is loving them!
• http://www.thelittlestgolfer.com/default/kids-golf-gear/tlg-first-set-golf-clubs.html

Checkout these playing & practice skills from the VISION 54 gurus taken from their newly published book:
PLAY YOUR BEST GOLF NOW. 


Go to the vision 54 link http://www.vision54.com/vision54/pages/home/ to checkout the many options available for IMPROVING YOUR GAME!

 The 8 Essential Playing Skills

1. LEAVE YOUR MIND BEHIND: Learn to engage with the shot. Just make it happen.

2. DECIDE AND COMMIT: Become a more confident player by learning to make clear decisions that you trust and stick with.

3. FIND YOUR BALANCE: Be centered physically and mentally.

4. FEEL YOUR TEMPO AND DANCE TO ITS RHYTHM: Learn how your natural tempo feels and discover what tempo works best for you.

5. TAME TENSION: Recognize tension and how to manage it. Balance, tempo and tension awareness (BTT) will make any swing better.

6. BUILD EMOTIONAL RESILIENCE: Learn how to turn disappointing results into steppingstones rather than stumbling blocks.

7. STORE MEMORIES: File away the good and neutralize the bad. You can learn from the past to make a better present.

8. DROWN SELF-TALK IN USEFUL THOUGHTS: Hear that voice in your head that raises doubts and fears? We all have it. Have a dialogue with it. 

The 2 Essential Practice Skills

1. SIMULATE GOLF: Make practice like golf by inviting the pressure of performing onto the practice range with you. This is crucial to getting better.

2. INTEGRATE SKILLS: Don't just hit balls, practice with a purpose. Have a plan. Hit each shot with an objective in mind.

Weight Training for Women's Golf is the most comprehensive and up-to-date women's golf-specific training guide in the world today. 

It contains descriptions and photographs of the most effective weight training, flexibility, and abdominal exercises used by top female golfers worldwide, including Annika Sorenstam. 

This book features year-round golf-specific weight-training programs guaranteed to improve your performance and get you results.

No other women's golf book to date has been so well designed, so easy to use, and so committed to weight training. 

This book enables female golfers of all skill levels to add extra yardage to their drives and irons. 

By following this program you can develop the flexibility and strength required to eliminate fatigue and increase distance with every club in your bag. 

With stronger and more flexible muscles, you will hit the ball farther and you will have better control over all of your shots throughout the round. 

Most importantly, you will reduce your chances of injury and be able to play 18 holes at your highest level.